Jack Marshall Smith - Lowe Syndrome
Posted: Mon May 07, 2007 8:20 am
Four years ago on May 6th, 2003 my son, Jack Marshall Smith, passed away from complications due to Lowe Syndrome. The readers of ISSA, Silverfish and NCDSA helped me get through the most difficult time of my life. Thank you.
Adam, the owner of NCDSA also provided a forum for the "Skateboarding Across America - On Board For Lowe Syndrome" fund raising trek. Thank you Adam. The readers and sponsors of ISSA, Silverfish and NCDSA helped to sponsor the trek and also to raise more than $30,000 for Lowe Syndrome research.
David Cornwaite of the United Kingdom first heard of "Skateboarding Across America - On Board For Lowe Syndrome" on NCDSA, as most of you know David pushed his skateboard all the way across Australia, one of his charities was the UK Lowe Syndrome Trust. This summer skaters will be skating across Europe to raise money for Lowe Syndrome and I have just learned of a fellow who will be skating the length of New Zealand next summer, he will also be raising money for Lowe Syndrome research. Da Farm race in 2003 also raised funds that were donated to the Lowe Syndrome Association. There was also a race in Oregon that contributed funds to the LSA.
It is impossible to put into words the love and gratitude I feel for the readers ISSA, Silverfish and NCDSA and for those who have undertaken fund raising adventures for Lowe Syndrome research. Although my son may be gone physically, his spirit lives on through each and every one of you. I thank you again with all my heart.
Adam, the owner of NCDSA also provided a forum for the "Skateboarding Across America - On Board For Lowe Syndrome" fund raising trek. Thank you Adam. The readers and sponsors of ISSA, Silverfish and NCDSA helped to sponsor the trek and also to raise more than $30,000 for Lowe Syndrome research.
David Cornwaite of the United Kingdom first heard of "Skateboarding Across America - On Board For Lowe Syndrome" on NCDSA, as most of you know David pushed his skateboard all the way across Australia, one of his charities was the UK Lowe Syndrome Trust. This summer skaters will be skating across Europe to raise money for Lowe Syndrome and I have just learned of a fellow who will be skating the length of New Zealand next summer, he will also be raising money for Lowe Syndrome research. Da Farm race in 2003 also raised funds that were donated to the Lowe Syndrome Association. There was also a race in Oregon that contributed funds to the LSA.
It is impossible to put into words the love and gratitude I feel for the readers ISSA, Silverfish and NCDSA and for those who have undertaken fund raising adventures for Lowe Syndrome research. Although my son may be gone physically, his spirit lives on through each and every one of you. I thank you again with all my heart.